Testimonial #1 - 3/20/17
I just wanted to let you know how very pleased I am with the new wraps that you put me in a few months ago. The swelling in my legs has gone down considerably, and I have much less pain. The best thing about the wraps is that they are comfortable. I can move around easier because they're more flexible, and they are cooler -- temperature-wise. Also, I'm hooked on the essential oils in my lotion. Thank you, thank you.
HC San Jose, CA
Testimonial #2 - 4/14/17
My Lymphedema story began in February 2004, at 25 years old, when I came home from a brief ski trip and found my ankle very swollen. I went to my primary care doctors and they ran a series of tests, then referred me to a vascular surgeon. He took one look at my leg and said I had Lymphedema. He then gave me a pamphlet for the Ginger-K Center for treatment. I went to see Phyllis very soon after that and she had the difficult job of really explaining to me what this disease was and what it would take to care for it. I remember crying and being so worried that my life was basically over. I was in the middle of planning my wedding and looking forward to a long, happy life with my new husband and this diagnosis derailed all of that. Phyllis was very patient with us, explaining all the different facets of CDT, self-care, stockings, nutrition, etc. I remember just being in a daze for those first few months, trying to absorb everything and still maintain a normal life.
Phyllis also suggested I go see Dr. Stanley Rockson at Stanford, a world leader in the Lymphedema field. He immediately wanted me to have a Lymphoscintigraphy to confirm my diagnosis. Well, the funny thing is that the test came back negative. He concluded that my main problem was venous insufficiency, not Lymphedema. In 2005, I consulted with several vein specialists in the area to see if they could find the problem vein(s) and possibly fix them. No luck. I finally gave up on that idea in 2006 and just decided to go on with life maintaining my leg as much as I could, along with Phyllis' help. I went to see Phyllis for treatments once per month, and she kept me up to date with all my stockings and other equipment. We continued on like this for the next eight years, and I couldn't have asked for better care.
In 2011 I decided to have a baby, despite how it might negatively impact my leg. Phyllis reassured me that I could get through a pregnancy just fine and she would help me every step of the way. I delivered a healthy baby girl in August 2012, without any added complications with my leg. After that, I decided to make it a priority to lose all the baby weight, plus more, to get myself as healthy as possible. I felt like this was the one way I could really make a drastic impact on my Lymphedema. I lost several pounds over the next year and was back to my high school weight. I realized then it had been over 10 years since I had first consulted with Dr. Rockson and Stanford and decided to visit him again to see if he had any new insights on how to help me. And he did. He first had me undergo two interventional radiology procedures to close the leaking veins in my abdomen and leg. Once we eliminated the venous reflux, I qualified for a drug trial for Ubenimex, which is a drug that could help repair the lymphatic tissue. I am currently in the trial and am very hopeful. The one thing I have heard over and over again from the Stanford team is how well my leg looks and how I take such good care of it. This is solely due to the years of care and attention I have received from Phyllis at the Ginger-K Center. She has made my life infinitely easier dealing with an incurable disease over the last 13 years.
TB Morgan Hill, CA